Text size

Bulgaria marks international Rare Disease Day

published on 2/28/25 6:15 AM

Photo: BTA, archive

At the initiative of the European Union of Patient Organizations for the Fight against Rare Diseases, on the last day of February, we focus on people living with a rare disease. Awareness campaigns are organized to raise public awareness of this issue.

March marking the World Day of Rare Diseases takes place in Sofia

In Bulgaria, nearly 370,000 people live with rare diseases.

Due to the lack of a national strategy and plan for rare diseases, Bulgarian patients are deprived of equal access to 19 of the 24 areas of healthcare for which the EU provides high-quality expert care, the National Alliance "Rare Diseases - Bulgaria" warns.

The organization calls on the authorities in our country, in addition to the traditional balloon release and demonstration of empathy for people with rare diseases, to take energetic and consistent actions to make the daily lives of these patients full and dignified.

Последвайте ни и в Google News Showcase, за да научите най-важното от деня!

Radio Bulgaria News rare disease rare diseases

More from category

Filling military vacancies - a key objective in the defence sector

Filling the large number of vacancies in the armed forces and improving their social status and motivation is the main objective of the Governance Programme for the period 2025-2029 in the "Defence" sector . Other expected outcomes of this programme..

published on 2/27/25 11:04 AM

Citizens boycott banks and food chains

A third supermarket boycott has been announced for today. This time the organisers are calling not only for a halt to shopping in large stores, but also to banking transactions - withdrawals, deposits, transfers and payments. Boycotting chain stores..

published on 2/27/25 10:10 AM

Made in Bulgaria – Union of Small and Medium Enterprises presents its annual awards

The association "Made in Bulgaria – Union of Small and Medium Enterprises" will hold its 31st Golden Martenitsa Award Ceremony this evening at 6:00 pm. President Rumen Radev is also expected to attend the event. The "Golden Martenitsa" award was..

published on 2/27/25 6:10 AM