Text size

Bulgaria marks international Rare Disease Day

published on 2/28/25 6:15 AM

Photo: BTA, archive

At the initiative of the European Union of Patient Organizations for the Fight against Rare Diseases, on the last day of February, we focus on people living with a rare disease. Awareness campaigns are organized to raise public awareness of this issue.

March marking the World Day of Rare Diseases takes place in Sofia

In Bulgaria, nearly 370,000 people live with rare diseases.

Due to the lack of a national strategy and plan for rare diseases, Bulgarian patients are deprived of equal access to 19 of the 24 areas of healthcare for which the EU provides high-quality expert care, the National Alliance "Rare Diseases - Bulgaria" warns.

The organization calls on the authorities in our country, in addition to the traditional balloon release and demonstration of empathy for people with rare diseases, to take energetic and consistent actions to make the daily lives of these patients full and dignified.

Последвайте ни и в Google News Showcase, за да научите най-важното от деня!

Radio Bulgaria News rare disease rare diseases

More from category

37 cases of youth gang aggression in Sofia this year, Interior Minister tells Parliament

Interior Minister Daniel Mitov told Parliament that 37 cases of harassment and aggression committed by youth gangs have been reported in Sofia since the start of the year, with 33 of the perpetrators already identified and detained. Government to..

published on 9/12/25 4:12 PM

Coordinated operation targets online crime and narcotics in schools

To coincide with the start of the new school year on 15 September, Bulgaria’s prosecutor’s office and Ministry of the Interior have launched a nationwide operation targeting drug trafficking near schools , shopping centres, nightclubs and other places..

published on 9/12/25 1:58 PM

Bulgaria urges new Danube bridge at Silistra to strengthen EU transport corridor

A new bridge over the Danube River between Bulgaria and Romania is needed in Silistra, Deputy Prime Minister and Minister of Transport Grozdan Karadzhov said during a visit to the town. “In addition to the second bridge in Ruse, there should be two..

published on 9/12/25 1:38 PM