5% or around 400,000 people in Bulgaria suffer from rare diseases, with approximately 75% being genetic. Due to missing registries, however, it is difficult to establish the actual number of patients with such diagnoses, reported BNR Plovdiv. In..
Share Your Colours! This is the motto of International Rare Disease Day, marked once every four years - and there is a reason why this is so. Because the people with rare diseases remain invisible for a long time – undiagnosed, shut out of the world,..
For the second year running, marches in support of people with rare diseases were held in Sofia, Varna and Pleven. The initiative is held on the occasion of the World Rare Disease Day. It is organized by members of the Rare Diseases and..
People with disabilities are to protest in front of the Ministry of Health today. They are calling for access to medical treatment, as well as for objective and rapid medical opinion and assessment of disabilities taking into consideration all..
In an online discussion, young people from Pazardzhik called on MPs to initiate legislative changes for the treatment of Bulgarians with rare diseases who have already turned 18. The reason for their request is their classmate who suffers from cystic..
